Today's blog is dedicated to this baby boy. As you watch this video and read the words below from his mother, would you lift this boy's name before our great and merciful Lord?
Sometimes no matter how many prayers we pray, or how many tears we shed, or how many hearts get broken. God says no, because God has a better way and answer.
Really emotionally exhausted... after the wait this morning we found out what we took in as good news, only hours later to speak with the Radiologist Oncologist and find out that this is not going to stop the cancer. The cyro and laser will only temporarily slow down the vitreous seeding (the small tumors that are forming) but it won't be able to control it long enough to keep it from spreading. Then the option of radiation has only a 40% success rate once vitreous seeding has started, and can triple the chance of a secondary cancers. Plus we have to look at how much damage has been done by all of the previous cryo and laser treatments to know if the eyes could even handle the radiation.
So where do we go from here....?
We come back in 3 weeks, and by what the RO explained to us at this point it is not a matter of IF he will need radiation or an eye/eyes removed, it's a matter of WHEN.
I'm finding it very hard to take all of this in. I knew we had a chance of losing his eyes, but when does the madness end? When will the night come that I can lay my head down and no that my baby won't have to suffer? I don't want that day to be the day I lose him to this awful thing.
I am so sorry to all of you who follow Brayden's journey and feel like we are forcing you take this emotional rollercoaster ride with us. Please know that we understand if at this point you need to get off. Unfortunately, we don't have the same option.
I have complete faith in GOD and his plan for Brayden's life and ours. There are just times when the mom in me can't help but want what I think is best for my children, but at the end of the day I except his WILL
The three weeks are now. Brayden goes the 22nd of June for his test. Will you ask God to comfort this family. To wrap His arms around his mom. I have walked through a child with cancer. My heart will never be the same and neither will this young mother. We know this great God we serve is on the scene and He is working to bring His grace, peace, and strength to this family. God loves Brayden more than his parents even could. He promises good and we trust Him even if it looks bad at the moment. Would you dare to ask for a miracle of complete healing for this baby? Nothing is impossible for God.